Looking for locals with Lupus

I am a 30 year old mother of a beautiful 7 year old boy diagnosed with Lupus SLE in December 1999. More recently I had a flar up and have now been diagnosed with Hemolysis on top of everything else. I just was admitted into the hospital for 6 days and had to receive a blood transfusion. My family has been there for me everyday through this ordeal, but I have never felt so alone, no one could begin to understand the things that are felt inside and the emotions that you go through. It has been tough and I have days that are better than others but I think it would help if there were others out there that also have Lupus that could relate to one another. Any one that has Lupus and is willing to start a support group please contact me, we do not have very many local resources for Lupus here....my email is Harrisonmeech@aol.com (subject: Lupus)

This story is inappropriate and should be flagged for moderation. Please choose from one of the following options:

You have indicated this comment should be removed.


The comment has been submitted for review. Thank you .

stephanie says ... on Thursday, Sep 24 at 12:40 AM

I'm with u all the way need help to know more about lupus going on two years looking for some support we need family and each other.

Sandra Scott says ... on Monday, Jul 20 at 4:14 PM

I have been living with lupus for four years (that I know of). My mother passed away from lupus complications. New to Bakersfield. No pain management.....

Anna Camacho says ... on Saturday, Apr 11 at 3:14 PM

I have lupus. I'm a mother of three girl. The ages are10,9,7, and its had for them. Because in so muchpain I can't do a lot with them. I like a loneand don't know what to do.

Corina Castellon says ... on Saturday, Dec 13 at 12:28 PM

I just added a group on Facebook calling Living day by day.. Feel free to add yourselves. I to have lupus and have been dealing with it for the last 3 years. Some days are easy and sometimes I feel all alone. my email is corinacastellon@gmail.com

Jen says ... on Tuesday, Oct 28 at 2:01 PM

If your in the bakersfield area contact me myers877@gmail.com we need to get a support going

Jen says ... on Tuesday, Oct 28 at 7:21 AM

Hello, is the support group still going? I'm also a 31 year old with 3 kids needing to find others who are going thru the same in bakersfield

Anonymous says ... on Thursday, Sep 11 at 10:39 AM

Hi im looking for a support group for lupus need someone to talk to

Susan Neel says ... on Sunday, Jul 22 at 10:27 AM

Hi, I am a 50 something grandmother who was just diagnosed with lupus. I am going through the application process for health benefits. It will be a while before I know, and can see a rheumatologist. I need support from others. Susan Neel

Amanda T. says ... on Friday, Dec 17 at 1:50 AM

I know i t has been awhile since anyone has posted but i was just wondering if anything has came about of this.Is there a Lupus support group in Bakersfield yet.?I am also a 30 yr old mother of 4 who could use a little outside support aswell.

joyce says ... on Tuesday, Jun 8 at 9:04 PM

if you can contact me and i can be of some help please email me at kolenes@yahoo.com

joyce says ... on Tuesday, Jun 8 at 9:03 PM

hello i am over 60 and was diagnosed in december of 09 with lupas . i support you 100% in building a support group here in bakersfield for our comunity to come together and talk and learn what lupas is and how we can live and learn about lupas!!

Carol E says ... on Sunday, Sep 7 at 4:08 PM

Hello. I definitely know where your coming from. I am a young mother of 5 beautiful young children diagnosed with Lupus almost 2 years ago and believe me I go through the same thoughts you are going through. Remember to take care of yourself.

Sherry says ... on Wednesday, Aug 6 at 7:41 PM

Meech, I am proud of you. You are stronger than you think, just like me uh? I will tell others at work also. Keep your head up.

Darlene Dotson says ... on Tuesday, Aug 5 at 5:35 PM

I just saw this today, and i just wanted you to know i am telling others about this support group that you want to start, i have a few friends/co-workers with lupus also, I am so proud of you and support you totally ... I LOVE YOU! MOM

Add a comment


Comment: 250 Characters Left

BakersfieldNow.com - KBAK and KBFX News and its affiliated companies are not responsible for the content of comments posted or for anything arising out of use of the above comments or other interaction among the users. We reserve the right to screen, refuse to post, remove or edit user-generated content at any time and for any or no reason in our absolute and sole discretion without prior notice, although we have no duty to do so or to monitor any Public Forum.